Showing posts with label pediatrician. Show all posts
Showing posts with label pediatrician. Show all posts

Tuesday, September 13, 2011

Celiac Disease Update

Our pediatrician called this evening and informed us that Anna's blood sample was negative for Celiac Disease.  Thank goodness.  I had a really hard time wrapping my head around how that would change her diet and affect every thing we prepared for meals, not to mention how that would affect the rest of her life.

The blood sample, however, did show a low blood count meaning that Anna's iron levels were low.  Going forward Anna will be on an iron supplement twice daily to boost her levels.  We are also to get as many iron rich foods in her as possible... along with the high calorie, high fat, high protein foods.

We will do a recheck of both her weight and blood iron levels in a month to see if anything we do has made a difference.  Meanwhile, I'm on a mission to "fatten up" my little girl, stat!

Sunday, September 11, 2011

Not What I Wanted to Hear

Well, my "babies" are officially a year and a half old- "big" 18 monthers- and there is little baby left in them.  They are toddlers through and through.  My 18 month post is coming, but today my post is more about our 18 month well child appointment that we had on Friday- the day they actually turned 18 months old.

First off, the good of the appointment:  They are both advanced developmentally in all areas, so no concern there.  Also, I was amazed that neither one even flinched when they got their shots at this appointment.  We usually do both kids' shots at the same time with two nurses, so that neither child knows what's coming.  There was one other shot appointment before this where they didn't cry, but that was a long time ago.  The shots were done, band aids applied, and that was that.  Anna also had blood drawn after the shot, and even more amazing to me- she didn't move a muscle for the entire blood draw.  I held her arm when the needle went in and she just calmly watched.  I kept her arm extended and her elbow straight while the blood was drawn, and she just sat silently looking at her arm.  She didn't make a peep or try to move the entire time.  I was shocked... and thankful!

Now to the reason why she had a blood draw.  The not-what-I-wanted-to-hear part of the well-child appointment.

Sam and Anna have been very consistent on their %ile curves since their 1 month stats.  Anna has been 5%ile for weight since then and Sam and has been 10%ile for weight since then (At birth, Anna wasn't even on the chart and Sam was barely on it).  This time, Sam dropped to 5%ile (gaining only 2 oz in 3 months, weighing 21 lbs 8 oz) and Anna dropped off the chart (gaining only 4 oz in 3 months, weighing 19 lbs 6 oz).

Our pediatrician expressed some concern that they both dropped a little off of their individual percentile curves.

I am taking this all in a little with a gain of salt.  Most children around this age drop a little, due to an increase in their activity and marked with the advent of pickier eating habits.  Both Sam and Anna did become proficient walkers since their last appointment.  The problem is that because they were at the lower end of %iles to begin with, they had less wiggle room than the average toddler their age.  It wouldn't be a huge concern if a toddler dropped from 75%ile to 50%ile for weight, even if that means they dropped 25 total %iles.  Sam and Anna each only dropped 5%iles.

But it doesn't make me happy.  In Sam and Anna's history, we've worked really hard through their refluxing days and bottle refusals to keep their weight at a acceptable point.  It gives me an extremely defeated feeling to know that my worst fear during those  times came true.  It makes me upset with myself that we haven't been working really hard to get the most calories in them, because I thought they were pretty good eaters.  Honestly, it was freeing once they were done with bottles to not have to work so hard at feeding them anymore.  I don't think they are all that picky and I think they eat a good amount of a variety of healthy foods.

Our pediatrician isn't concerned about Sam because he's still on the chart and he eats like a horse.  He eats more than me at many meals.  The other night he ate 3 entire brats (his and mine) in addition to other food.  I ended up making something else for me to eat because he ate my dinner in addition to his.  He's just an active guy.

Anna however, doesn't eat as much as he does, and doesn't eat a lot of meat.  Her favorite things to eat are vegetables and fruit... all the foods that aren't high in calories or fat.  Our pediatrician wanted to do a blood test to check for celiac disease to rule that out.  We both think that it will be negative, so the next plan will probably be to make a conscious effort to fill her up (and Sam too) with lots of high fat, high calorie food.  We should hear about the results by the end of the week.

I'm just hoping that Anna does not have celiac disease, or allergies or some other underlying cause for her low weight and that she's just an active toddler who's just always been naturally on the petite side.  Meanwhile, we're going to attempt to add calories to both of their food while not adding them to ours!

Wednesday, October 6, 2010

I'm Gonna Be Gray By Age 35

Good Lord, what a week so far.

I stayed home with Anna yesterday because of her fever. She napped a lot (4 naps with over 6 hours of total nap sleep) but ate very little compared to her usual amount lately. During the day I had noticed that her soft spot was kind of more pronounced than usual- "bulging" out, even. I called our pedi's office just to see if that was something I should be concerned about. I was told somewhat dismissively "maybe I was just noticing it more than usual because she was sick" and that maybe she was "over-hydrated" (WTF- I had already told the nurse that she wasn't drinking as much as usual AND that she had had 6 diarrhea diapers during the day- there's NO WAY she could have been "over-hydrated" and I didn't even know that it was possible to be "over-hydrated." I ended up googling bulging fontanelle (why do I always consult Dr. Google even though I KNOW I'm going to get the worst-case-scenario??) and meningitis came up. Her other characteristics- fever, diarrhea, stiff neck (probably more related to her torticollis but aggravated by not feeling well) plus the bulging fontanelle were all listed as symptoms of meningitis. It was too late to call back by then, but we had been told to bring her in if she had the fever for 3 days anyway, so we waited for the morning to see how she was doing. I really didn't think it was something super serious, or I would have brought her to the ER. I thought we would be okay at least until morning.

Anna didn't have a fever this morning, so we brought her to daycare. Our daycare provider emailed about 10 am and said she had a fever and asked if she could give her generic Tylenol. Since we had been told to bring Anna in to be checked over if she had the fever for 3 days, my husband made an appointment to bring her in as soon as we could. (I had our first school field trip today, so it would have been really difficult to be gone from work myself. My husband has a lot more flexibility at his job than I do.)

My mommy instinct was warranted, because our pedi told my husband she had never seen a soft spot protruding that much on an infant as old as Anna before, and ordered a CT scan and bloodwork to try and figure out what was going on. Although Anna was hungry, they wouldn't let my husband feed her in case the results from the bloodwork came back bacterial and she would need a spinal tap. Good lord. She had only napped for 15 minutes all day on top of all that. I called over an hour after the appointment because I had not heard anything from him yet (I figured he would have left by then), and this is what I heard (my baby screaming in the background) "they are going to do a CT scan to rule anything out- oh, I have to go the doctor just walked in." Click. I had to wait over an hour to find out anything else. Way to make a momma want to drop everything and run to her car to get to her baby as fast as possible! BUT, as a teacher, it's not like I can leave my class high and dry with no adult to watch 16 5-year-olds. Plus, my husband was there, what was I going to do that he was not doing? So I stayed and waited not-so-patiently for more news.

The short version is that the bloodwork came back showing a viral infection, so she most definitely does not have bacterial meningitis (the bad, bad kind). And no spinal tap was needed, thank goodness. She finally got to drink her bottle and was in relatively better spirits.

She may have a mild case of viral meningitis, but neither the neurologist nor our pediatrician thinks that is the kind of viral infection she has (they don't know what kind though). She officially has a "begnin enlargement of the subarachnoid space"- basically extra fluid in the tissue layer of her head (NOT her brain and not in the layer that has veins, both of which would be bad) that is pushing her soft spot up. 16% of infants apparently have this, more commonly boys. They will be monitoring her head circumference closely as she grows and that's about it. It shouldn't cause any issues or interfere with her development.

Anna also happens to have her next cardiologist appointment tomorrow to check on her VSD and ASD heart murmurs. The plan is to get a EKG to see if they have gotten smaller. I anticipate good news, because the last couple of times her heart has been listened to, our pedi said it sounds like it has gotten smaller.

Life is certainly never dull around here! For a relatively "healthy" child, she sure has seen a lot of doctors! Besides her pediatrician she has seen a cardiologist for her heart murmur, a gastroenterologist for her GERD, a physical therapist for her torticollis, a chiropractor, and now a neurologist. I'm 31 and have never had a EKG or a CT scan. Anna's less than 7 months old and she's had both. I'm really ready for this to calm down a little around here and have a normal couple of weeks. I'm not sure I know what normal is anymore!

Sunday, June 13, 2010

Momma Knows Best

The reflux thing has gotten better, and we are slooooowly inching our way out of Reflux Hell (for the third time, mind you). My mom came to visit and help this weekend because my husband had to go into work on Saturday(since he's under major deadlines right now) and one more day soloing it was pretty much not possible given our status this week.

We switched the Rx Prevacid Solutab dose to before Sam and Anna's morning bottle, and both babies have begun drinking their first bottles much better. I began giving one OTC Prevacid dose (same 7.5 mg) in the middle of the day before their third bottle. It seems like each dose helps Sam and Anna drink well without refluxing for two bottles after they get the medicine. Here's how I know this: by the time we got to their last bottle of the day, all bets are off and my poor babies have been refluxing so badly they hardly drink at all and we spend hours trying to get hysterical babies to go to bed.

Gee, you think they need three doses of 7.5 mg Prevacid each a day to manage their reflux??? Our pediatrician might not know what my babies need, but I sure do!

We never had this problem with bedtime before, because we originally gave the one dose of Prevacid right before their bedtime bottle. It is so easy to tell that the Prevacid wears off, it makes me even more unhappy with our pediatrician that she won't prescribe the amount they need to manage the reflux successfully. But it also makes me very happy that I think we have found out what we need to do to make things better. So I added in the third dose of 7.5 mg and bedtime is smooth sailing again. Now Sam and Anna are back to drinking 5 oz each bottle and their weight is back to going up in an appropriate increase. Since they were weighed twice this week, we learned that Anna gained 4 oz in 2 days. This compares to the 1 oz she gained in 7 days the week before.

I'll admit, it is a HUGE pain to give the Prevacid 30 minutes before eating via a syringe three times a day. But it is a huge pain I'll happily experience to make my babies happier and healthier.

Thursday, May 27, 2010

Now Returning...

...to Reflux Hell. *sigh*

We ended up making a visit to the pedi office yesterday, after discussing our eating/sleeping concerns with the nurse. (We weren't as concerned with the crappy napping, but just mentioned it as long as we were discussing the other stuff.) The pediatrician mentioned something we hadn't heard before- that reflux typically get worse as they get older, before it gets better around (hopefully) 4 months. He thought that the problems we've had lately with eating are probably due to Sam and Anna's reflux and wants them to get at least 23-24 oz in a day. Monday and Tuesday, Sam was around 22 oz, when he used to get in close to 30 oz a day. Soooo- we are to switch formula back to the one we were using up until 2 weeks ago and see if that helps. If it doesn't, we are on our way to using Enfamil's Nutramigen- one of the most expensive formulas out there. Nutramigen is a hypoallergenic formula. Too bad we just got 4 cases of free Gentlease formula, huh?

Wednesday, April 21, 2010

Now Leaving...

...Reflux Hell!

OMG- we have rounded a corner, y'all!

We left the pediatrician Monday armed with two prescriptions for Prevacid, administered the dose when we got home to both Sam and Anna... and now we here we are, two doses later, seeing two completely different babies.

Thank God for grandmothers and prevacid!

Thanks to that lovely combo, it is only 11:00 am and not only do I have two full-tummy peacefully sleeping babies, but I was able to get dressed, eat breakfast, do my hair and makeup, brush my teeth, wash bottles, pack up newborn clothes that are now too small, pick up a little, hop on the computer and I'm on my second load of laundry! I should even be able to eat lunch today! (And honestly, the grandmother was reading a book most of the time and had little influence on that list.)

My mother in law leaves today and my mother arrives tomorrow. My mom is planning on staying through Tuesday, so hopefully by then we'll have the reflux beast completely tamed before I jump back into solo parenting for 10 hours each weekday.

Best part ever- it's been two days since I cried. I've regained my sanity and my children aren't in constant pain anymore. Hallelujah!

Wednesday, March 31, 2010

Geniuses Already

Did I mention yet that my babies are geniuses?

No?

Well, today at 3 weeks and 1 day old (adjusted age of only 3 days), Anna rolled over from her tummy to her back all by herself. According to Dr. Google, this developmental milestone occurs around 3 months.

Need further evidence?

In the hospital bassinet when he was 2 days old and getting his vitals done, Sam did a push up while laying on his tummy: lifted his head, pushed up on his arms, and arched his back to lift his chest off the ground. The nurse doing the vitals was amazed. According to Dr, Google, babies are able to do this around 5 months.

Do I have future professors, molecular biologists or astrophysicists in my arms? Maybe. :)
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We also had our last weight check today, and Anna is now up to 6 lbs 8 oz (up 1 lb 8 oz from birth weight in 3 weeks) while Sam now weighs 6 lbs 14 oz (up 1 lb 4 oz from birth weight). This means Anna can now graduate from her car seat bed into a regular infant carrier. Believe me, judging from the way she wails when in the car seat bed, I bet she is as happy as I am about that!

Friday, March 19, 2010

First Appointments and More!

On Wednesday, we took our babies to their first ever pediatrician appointment. It was early, at 8 am- and our first experience getting both us and them ready to leave the house. I am proud to say that we actually made it to the doctor's office 5 minutes early. Go us!

Sam and Anna were both weighed, and Anna made herself at home by peeing on the scale. I figure better her than Sam! At 8 days old, Anna is back up to her birth weight of 5 lbs even. Sam weighed 5 lbs 7 oz- so he was 3 oz shy of his birth weight. In the next two weeks we will be going back once weekly for weight checks because they are so small. Once Anna hits 6 lbs, she will be able to ditch the car seat bed. I think that will make her very happy as she does not like to ride flat. She cries and cries. On the way home, we figured out a way to soothe her discomfort- by playing Bob Marley. I listened to my Bob Marley CD every morning on my way to work during the pregnancy, often singing along. In utero, I could tell the babies recognized my favorite songs because they tended to be more active while I was playing them and singing. Lo and behold, Anna instantly settled once those songs started playing on our drive home. It was really neat to watch.

Both Anna's and Sam's head and length put them at the 10%ile and besides Anna's heart murmur, they are both perfectly healthy. Their pediatrician even complimented us on how relaxed and calm my husband and I both were- she said we didn't seem like first time parents.

I also had a followup appointment in the afternoon to check my c-section incision. I decided to drive by myself so we didn't have to cart the babies on the 45 minute drive one way. While driving, I got really sad because I realized it was the first time I left my babies somewhere without me (but they were with their totally competent dad). I started crying when I realized it was the first time that I was without them since July. It was a really lonely feeling. Lovely baby blues. :)

The good news is that in 8 days, I have already lost almost 30 lbs of pregnancy weight. Go me! The depressing news is that I have almost 40 lbs to go to get back to my pre-IVF weight which is my smallest weight ever as well. The incision looked good, so I just have to go back at 6 weeks for the post-partum appointment. I have big plans to go for marathon walks in the beautiful spring and summer weather once I get the okay from my doctor. Hopefully that will help melt off some of that 40 lbs.

After the appointment I stopped to look for some preemie sized clothes for both of them. I got a few things, but it isn't easy to find preemie clothes. After trying them out, I decided some will need to be returned because length wise the two are falling in between preemie and newborn sized clothing. Why is it that some companies think preemies are short and fat??? Fat is the last thing a baby gains. Preemie clothes should be skinny. I can't wait until they get a little bigger and out of the awkward in between clothing size- we have way to many cute newborn clothes that I am dying to dress them up in!

Now some new pictures:
1 week old

Fighting like siblings alreadyStarting Sam early on a little Eric CarleAnna's first tummy timeOur family is complete